Rare Tumor (LAMN)
Rare Tumor (LAMN)
Rare Tumor (LAMN)

Community, Videos & More

Community Founder
  • Sean Moloney
  • Sean Moloney
    colonoscopy surgery, rare tumor, herniated discs, health filmmaking
Community Members

My Rare Tumor Community
My goal with "Rare Tumor" community (diagnosis: low grade appendiceal mucinous neoplasm) is to educate people through my experiences, challenges, and recovery from a tumor diagnosis in my cecum and appendix during a colonoscopy procedure. Interesting moments here in the hospital at Mt. Sinai that I'll look to capture include review of family history, treatment, pain management, recovery path, receiving the diagnosis, taking the prognosis home, and my feelings and concerns all along the way. You'll note from my photo that I also intend on adding as much comedy and creativity as possible. To me that's a staple in any community on or offline.


Rare Tumor (LAMN) Timeline

Sean's Medical Journal Entry VII - Post 5 year diagnosis update

Sean's Medical Journal Entry VII - Post 5 year diagnosis update

About this video:

Reporting from Sloan Memorial: I'm grateful to report that my recent endoscopy and colonoscopy results are negative. Monitoring has been critical throughout the last 5 years and I will continue updating my progress along the way. Please message me if you have any questions. 

Thank you,

Sean

lamn rare tumor colon colon cancer low grade appendiceal mucinous neoplasm
Sean Moloney
Published by Sean Moloney
Published on: May 3, 2019 at 15:23:15
Comments 1
  • Sean Moloney
    Sean Moloney 7 June 2019, 11:57
    STM Update: Diagnosis Barret's disease -- shows importance of endoscopies! On PPI for life.
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Sean's Medical Journal Entry 1 - Introduction

Sean's Medical Journal Entry 1 - Introduction

About this video:

Hello everyone! This is the first video entry following my operations. Join my community to see the story unfold. Thank you!

cancer tumor oncology
Sean Moloney
Published by Sean Moloney
Published on: February 1, 2018 at 17:00:16
Comments 0
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Two Year CAT Scan. LAMN. Sail On!

Two Year CAT Scan. LAMN. Sail On!

About this video:

Hi everyone. Today I'm heading up to Memorial Sloan Kettering for a follow up CAT Scan. Keep you posted with frequent uploads and news regarding me and LAMN. Cheers!

LAMN rare tumor cancer Memorial Sloan Kettering NYC
Sean Moloney
Published by Sean Moloney
Published on: June 13, 2016 at 11:46:09
Comments 0
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On the water

On the water

About this video:

Crossing the high seas of health and wellness

Seas water rough
Sean Moloney
Published by Sean Moloney
Published on: January 11, 2016 at 14:30:11
Comments 2
  • Ronda Lawry
    Ronda Lawry 12 January 2016, 13:02
    Birds can always find somewhere to go; not always true for us humans. The water, although rough, can always get rougher. It's up to us as individuals to do whatever it takes to make it a smoother, more comfortable ride.
  • Sean Moloney
    Sean Moloney 18 October 2017, 11:59
    Beautifully written!
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Sean's Medical Journal Entry VI - Seeking a Second Opinion

Sean's Medical Journal Entry VI - Seeking a Second Opinion

About this video:

Today, I am heading off to Memorial Sloan Kettering Cancer Center to seek a second opinion in regards to my Appendiceal Mucinous Neoplasm. Stay tuned, as I'll be posting the results from my pathology report and other observations and news with respect to my diagnosis. Thanks for watching!

colon surgery tumor cancer appendiceal mucinous neoplasm
Sean Moloney
Published by Sean Moloney
Published on: December 26, 2014 at 15:37:27
Comments 0
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Sean's Medical Journal Entry V - Getting Discharged

Sean's Medical Journal Entry V - Getting Discharged

About this video:

In this final entry from the hospital bed, I talk a little more about the extent of my surgery and share my final thoughts before going home. I hope you all enjoy my entries and I will continue to post updates regarding my official diagnosis from the pathology report, next steps in recovery and my new lifestyle. Thank you.

colon surgery tumor cancer
Sean Moloney
Published by Sean Moloney
Published on: November 17, 2014 at 18:09:04
Comments 1
  • Sean Moloney
    Sean Moloney 21 November 2014, 9:17
    If any one else has experienced a rare tumor diagnosis, I encourage you to follow me and start your own HealthCosmos. Together we learn!
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Sean's Medical Journal Entry IV - Blood Tests

Sean's Medical Journal Entry IV - Blood Tests

About this video:

Bedside Equipmemt + Blood Tests : In this
very short "selfV" (video) clip (part II of II) shot in the middle of
the night only 7 hours after my surgery I ask my other night nurse (who was
also extraordinary through out some of the toughest nights) to explain the
medical diagnostic equipment and the blood tests I'm prescribed to give my
attending physicians the information they need throughout my week in the
hospital. These tests proved to be critical during my stay in communicating my
recovery during my hospital stay at Mount Sinai, Upper East Side, New York,
City Visit - http://www.mountsinai.org

colon surgery tumor cancer blood tests
Sean Moloney
Published by Sean Moloney
Published on: November 11, 2014 at 18:53:13
Comments 1
  • Sean Moloney
    Sean Moloney 21 November 2014, 9:17
    If any one else has experienced a rare tumor diagnosis, I encourage you to follow me and start your own HealthCosmos. Together we learn!
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Sean's Medical Journal Entry III - My Bedside Equipment

Sean's Medical Journal Entry III - My Bedside Equipment

About this video:

My Bedside Equipment in this video (part I of II) shot in the middle of the night only 7 hours after my surgery I ask my night nurse (who was extraordinary through out some of the toughest nights) to explain the medical diagnostic equipment and the breathing instrument I'm prescribed to improve my breathing over time. This equipment provided to be critical during my stay in communicating information about vital signs and dosing of medication including pain medications. I was admitted to Mount Sinai, Upper East Side, New York City under the care of Sergey Khaitov, M.D. F.A.C.S., Assistant Professor of Surgery in the Department of Colon Rectal Surgery (visit www.mountsinai.org)

colon surgery tumor cancer
Sean Moloney
Published by Sean Moloney
Published on: November 11, 2014 at 18:52:22
Comments 1
  • Sean Moloney
    Sean Moloney 21 November 2014, 9:17
    If any one else has experienced a rare tumor diagnosis, I encourage you to follow me and start your own HealthCosmos. Together we learn!
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Sean's Medical Journal Entry II - Diagnosis

Sean's Medical Journal Entry II - Diagnosis

About this video:

In this video in the middle of the night only 6 hours after my surgery, I discuss my family history and the observations of my gastroenterologist, Dr. Roger S. Klien, MD of Summit Medical NJ leading to my CAT scan and foreshadowing my tumor diagnosis. I will also talk about my goal with ColonCosmos and ask others to 'follow/support' the cosmos and add their own experiences and thoughts through comments and video clips. I was admitted to Mount Sinai, Upper East Side, New York City under the care of Sergei Khaitov, MD F.A.C.S., Assistant Professor of Surgery in the Department of Colon Rectal Surgery (www.mountsinai.org).

colon surgery tumor cancer
Sean Moloney
Published by Sean Moloney
Published on: November 11, 2014 at 18:51:26
Comments 1
  • Sean Moloney
    Sean Moloney 21 November 2014, 9:17
    If any one else has experienced a rare tumor diagnosis, I encourage you to follow me and start your own HealthCosmos. Together we learn!
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